皇冠体育app

Introduction

皇冠体育appse revised screening standards for the NHS sickle cell and thalassaemia (SCT) screening programme replace previous versions. 皇冠体育appy apply to data collected from 1 April 2018 unless stated otherwise in the document.

皇冠体育app UK National Screening Committee (UK NSC) recommends all eligible pregnant women in England are offered screening for sickle cell and thalassaemia and all newborn babies are offered screening for sickle cell disease as part of the newborn blood spot screening programme.

We aim to make sure there is equal access to uniform and quality assured screening across England and that women are provided with high quality information so they can make an informed choice about their screening options and pregnancy choices.

皇冠体育appse documents may link to a central glossary of terms, NHS population screening explained and for definitions of terms. If you would like to see the meaning of an acronym, hover over it with your cursor and you will be able to see the full definition.

Summary of changes from previous version of standards

SCT-S01: coverage: antenatal screening

Updated to reflect key performance indicator ST1.

SCT-S03: test: completion of family origin questionnaire (FOQ)

Updated to reflect key performance indicator ST3.

SCT-S05: referral: timely offer of prenatal diagnosis (PND) to women at risk of having an infant with sickle cell disease or thalassaemia

Updated to reflect key performance indicator ST4.

SCT-S02: test: timeliness of antenatal screening

Updated to reflect the key performance indicator ST2 and clarify the meaning of 鈥榯est鈥� - which describes the generation of a result rather than the taking of a sample.

SCT-S09: intervention or treatment: timely follow-up, diagnosis and treatment of newborn infants with a positive screening result

Updated to:

• include insignificant cases that do not get as far as the medical centre (clarified in title and definition)
• explain in the rationale that to meet the standard both significant and insignificant results must be followed up
• include in the definition 鈥業nfants born outside of England are excluded from this standard鈥�
• highlight within the responsible for submission section that the newborn outcomes system will be used in future

Pathway themes

NHS SCT screening standards look at 5 themes to assess the pathway and 4 key performance indicators (KPIs) are derived from standards 1, 2, 3 and 5.

皇冠体育appme: coverage

皇冠体育app related standard is SCT-S01: coverage: antenatal screening

皇冠体育appme: test

皇冠体育app related standards are:

SCT-S02: test: timeliness of antenatal screening

SCT-S03: test: completion of family origin questionnaire (FOQ)

SCT-S04: test: turnaround time (antenatal screening)

SCT-S07: test: timely reporting of prenatal diagnosis (PND) results to parents

SCT-S08: test: reporting newborn screen positive results to parents

皇冠体育appme: referral

皇冠体育app related standard is SCT-S05: referral: timely offer of prenatal diagnosis (PND) to women at risk of having an infant with sickle cell disease or thalassaemia

皇冠体育appme: diagnosis or intervention

皇冠体育app related standard is SCT-S06: diagnosis or intervention: timeliness of prenatal diagnosis (PND)

皇冠体育appme: intervention or treatment

皇冠体育app related standard is SCT-S09: intervention or treatment: timely follow-up, diagnosis and treatment of newborn infants with a positive screening result

Resources to support providers and commissioners

Additional guidance is included in the:

• programme handbook
• laboratory handbook

Reporting and publishing

Annual standards reports and quarterly KPI data are published. We share the data with NHS England before publication.

Services can also access the quarterly KPI submission templates.